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I want to know what to do to make it go away, its nauseating. Physical and emotional stress are the most common triggers of fibromyalgia flares. Gut-brain connection: 3 fatty acids may be linked to tau-mediated damage, Study in humans confirms link between Parkinson's and gut bacteria imbalance, Multiple Sclerosis (MS): Stem cell treatment may prevent worsening of symptoms, Lifestyle factors may help prevent many inflammatory bowel disease cases, Debra Sullivan, Ph.D., MSN, R.N., CNE, COI, Everything you need to know about fibromyalgia, pain throughout the body, particularly in the back or neck, extreme sensitivity to touch, light, smoke, and certain foods, stiffness when staying in the same position for long periods, trouble with memory and concentration referred to as fibro fog, ensuring the sleep environment is dark and quiet, avoiding eating large meals late in the evening, a minimum of 11 tender points following examination, repeated instances of at least six fibromyalgia symptoms, naltrexone, which is an anti-opioid medication, may be helpful. I also smell phantom smells like tobacco.. However, symptoms may vary among individuals. In rare cases, a disorder called maple syrup urine disease can sweeten the smell of urine. Some people with fibromyalgia may experience certain symptoms regularly. Kidney leakage (chyluria). People with fibromyalgia may be more sensitive to pain than people without fibromyalgia. restless legs syndrome - a tingling, uncomfortable feeling in your legs, especially at night. It is not the smell per se, it is the chemicals that are causing MCS, etc. Does anyone else suffer from this problem? Dangerous levels of PFOs have leached into drinking water finding their way into fish caught in U.S. rivers and lakes. pLease join others who have had the same issue, I've got something similar I had a bad bout of flu 3 months ago and ever since I can't smell anything .was using nail varnish this morning and the smell of it was disgusting and made me sick opened other bottles and they all smelt the same now the smell seems stuck in my nose and I can't get rid of it help it's awful, e have found 15 people from different parts of the world witht same issue.. we are connected here on facebook. On public radio once I heard an episode of "Radiolab" which discussed a different issue, but the "treatment" may be somewhat related. Urinary and pelvic complaints are common symptoms of fibromyalgia, particularly in women with the disease. Recording these activities might highlight patterns of what triggers a flare. Have a happy Christmas in the sun there in Perth!! So pleased to see that there are so many persons having the same kind of experience I am having. I hate soaps or scents, especially floral, citrus are somewhat better. Plus I have a cough and clearing of my throat when I'm lying on my back. Easily fixed with a cream applied a few times a day. I forget words, stumble over them, say words that make no sense. I was too terrified to eat myself because of diarrhea. Someone with fibromyalgia may sometimes experience clumsiness, dizzy spells, feeling too hot or cold, painful periods, restless legs syndrome, and numbness or tingling in hands and feet. Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. I have to avoid certain foods just because Ive become so sensitive to them. I dont eat ham but the smell in urine started after I had ham. Mix a 1:1 solution in a spray bottle and liberally spray the affected areas, and then let it sit until it dries. Histamine helps regulate many bodily functions including digestion, sleep, sexual function, and blood pressure, and in the brain it functions as a neurotransmitter, carrying chemical messages between nerve cells. Many people with fibromyalgia experience stress and feelings of depression, anxiety, and frustration. I have a doctor appointment with a neurologist coming up soon, maybe he will give me some answers. Sleep hygiene practices that may help include going to bed and getting up at the same time every day and limiting napping during the day. I live in an apartment building second floor. Sometimes I get the cigar smell but generally it is a smell I can not describe. Many people are wondering if we need a sixth shot. No one gets pain, hypersensitivity, etc. I have EXACTLY the same problem, which I find equally unpleasant. I have had to cut my hours back at work and Im barely making it by. The individual symptoms differ from one person to another. unless they have it, even me in the past. Its caused me to have accidents. Morgan V. I can actually pee every 15 minutes. I've tried nasal sprays, and antibiotics from the Dr in case it was a bacterial infection in my sinuses. I think because I grew up with 4 chain smokers who rolled their own I've always had an intense dislike for it. It often coincides with urinary frequency and urinary tract infection. I read up about nasal polyps and saw a specialist. Click here to join our fibro community and connect with people who get it. You also have the option to opt-out of these cookies. I thought it was the propane fireplace but nobody else can smell it, I feel like I am losing my mind! I need to nap to get through the day. Kirsten M. R. Exhaustion and seclusion. Polyps are smaller. The stench was dizzying to me. Your pain and discomfort can be minimized, helping you to live a more active and fulfilling life. I will talk to my drs. It started about 2 months ago. Fibromyalgia also causes sleep problems, fatigue, and emotional and mental distress. This past Thanksgiving I had to sit and watch everyone eat. I avoid large crowds due to the different smells and noises. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. As a leader in digital health publishing for more than 25 years, WebMD strives to maintain the most comprehensive and reliable source of health and medical information on the internet. If you notice a sudden onset of sweet-smelling urine, you. Urinary tract infection: Bacteria in the urinary tract can cause an infection along with smelly urine. The stress of coping with a condition can also lead to anxiety and depression. However, more severe health conditions may cause urine odor symptoms, such as an infection, ketonuria, liver disease or liver failure, and chronic renal (kidney) failure. I have also been suffering from this same issue for about 2 years now, I believe it to be due to me having a mouth infection I also have thrush in my mouth due to the mouth infection and have been recommended to have a root canal performed, I find that when I eat dairy products the smell gets worse, sometimes when I have a big meal the smell disappears I can't seem to find a cure for this, I've tried so much medication for my mouth thrush but it still persists and have been putting off having a root canal being done as ive read a new study recently about the dangers were not told about root canals and the life threatening illness after having it done. I know stress can cause many odd symptoms and the ghastly time you had at your workplace must have been hell, I'm wondering if it is linked to that. The 11 Most Common Candida Symptoms. irritability, or feeling low or weepy. I try not to eat bread and fatty food and it seem like the smell disappears.. try this remedy and let us know.. A little internet research shows that are a number of people who are facing this issue. Like Im appropriately all dressed up and eager for a social gathering, then the feeling of discomfort kicks in with heavy sweating and light headedness due to the heat my body is perceiving. So embarrassing. Eloise T. Brain fog When I cant remember the words. 12 Symptoms can include: Headaches Chronic migraines Dizziness and vertigo Fainting (syncope) Sensitivity to temperature, humidity, and an atmospheric pressure Sensitivity to light (photophobia) 13 Sensitivity to noise (hyperacusis) There are several different odors which I cannot really compare or describe but they are all "Putrid" and make me feel sick. . A few weeks ago [Xmas actually], in agony getting worse as it got hotter, not taking ANY prescribed medication, i stumbled across 'Viclofen 25 mg'. Blessings! (1) The problem of IC affects approximately 4million to 12million of people only. As well as the burning I could smell a car start 2 streets away or a ladies perfume on the other side of the road. It's like acquiring a new sensation you never had. However, changes in brain chemical levels and central nervous system function may play a role. Read The Mightys comprehensive guide to fibromyalgia here. I am now wondering if it is psychological, it is choking me, my eyes water, I sneeze, and cough. It's also called "fish odour syndrome". I too have fibro, and am very interested in this conversation uyo two are having (old though it may be). Omg I have been smelling an odd smell for years and have recently connected it to stress, I have not met anyone with the same problem , it drives me crazy, people look at me as if I'm mad when I say what I'm experiencing, I also put my head down my top sometimes , it's also worse at home especially when I'm in bed. When you smell of your own body it's bringing you back home.. lol.. it's your baseline for everyday. The neurologist did look into my nose and said it is still not right? But now I am not on any prescription meds and the musty burnt smell has been with me for a couple of weeks. A score greater than 30 is considered a normal sense of smell. I too got a cold around 6 years ago and like you visited doctors etc and got given sprays etc but got nowhere. That did help with lots of aches and joint pain. For some reason, I thought there might be a connection. Breathing in my t-shirt. SO glad to hear Im not the only one, and that this is an actual thing! The most annoying is that things such as petrol, rotten odors, smell of sweat, some organic chemicals, boiled meat etc. Turns out we plenty.. I can barely smell things, although I had exceptional sense of smell. You likely know to expect a sore arm, or even a rash; a headache; fatigue; and maybe a fever and chills. At present I'm laid up in bed with a heavy cold Crickey, thanks so much for replying.! The opinions expressed in this column are not those ofFibromyalgia News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining tofibromyalgia. Anxiety maxed out. It must be horrid for you to have this because unless someone has ever had phantom symptoms they just can't understand how real it can feel. I thought it was the propane fireplace but nobody else can smell it, am I truly going mad?! The smell still remains now nearly 8 months on. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. These may be bacteria, glucose, or amino acids. Infection. To the uninitiated, it seems impossible that an odor could cause physical symptoms, such as headache, nausea, fatigue, confusion, and dizziness especially when the odor isn't even a particularly unpleasant one. My mum took her life on pain killers and alcohol in the 80's, so that's why i'm against them. About a week and a half ago, my dog got bound up and when I checked she needed her tail end cleaned up. I kept one at work, at home and in my car. Some fibromyalgia sufferers find that they have to urinate as frequently as every 20 minutes. Thank you for your question, Im not alone. John can you be specific what you took? Fatigue is one of the main symptoms of fibromyalgia. The control group had an average score of 34.6 +/- 2.5. The exact cause of fibromyalgia is unknown. Its kind of embarrassing. Krystina K. F. My balance. Gp.ENT.Neurologist.. 'cant find anything wrong' 'poss psychosomatic' blah blah. And is it still working? Ever since I moved to my condo I have have had lung issues. Turns out my neighbour puts some kind of scent on his stove which filled my house every night. Same problem with cooking.guessing at spices and needing someone to test-taste. When it strikes, I have to sit down immediately, regardless of where I am. Lisa T. I am tired of my weight gain. This urgent desire to urinate can often take you by surprise, leaving your searching for a bathroom to visit. I used to love cooking too - cooking was something creative that I could enjoy despite being housebound most of the time but now.. Well I find all the joy has gone from it. Hope it gets cooler for you - some breezes would help!! Sorry, just my meds making me sound like it! Garnet D. When someone goes to touch me, I always flinch because I know its going to hurt. Amanda P. When I have to tell people please dont hug me goodbye or hello because it hurts too much. Audrey M. Loss of grip and movement in my hand resulting in numerous dropped jars. I come from an Indian family and we use a lot of spices in our food. Being so cold. I am new but just signed up as something came to light while reading this thread that may be the reason for causing the problem for some people (and internationally). I smell a "burning paper" smell ALL the time in my apartment and nobody else can smell it! Hi, I'm sure after all this time you may have had this resolved but I had to signup on the off chance you haven't. I often wonder if people notice just how much effort it takes me to do these things. Terri S. A. Urinary frequency and abdominal bloating is quite common amongst fibromyalgia patients, particularly women. This sounds really unpleasant for you. This seems to be another thing that I smell. I really thought it was air-conditioning causing these strange symptomsI am at a loss! I use a lot of Post-it notes and set reminders for just about everything. Bee E. Not being able to process what someone is saying to you and then looking rude for asking what they said more than once because to your brain they may as well be speaking gibberish. Dani S. Definitely the brain fog. notice of intent to sell property; what kind of gun will kill a grizzly bear Starting 18 months ago I became aware of smells that did not correspond to anything in my immediate environment. My issue i am smelling brewing coffee every day in my room and its driving me nuts. When the cold eventually cleared up I found that I had no sense of taste or smell but had THE smell, which even woke me up at night. Yes, eating this healthful vegetable can make urine stink. .. horrible. Chopsy666 my email is: legalized2014@icloud.com you said to leave you my email so you can let me know what I need to do.. to end this, been through same thinv with the ameels and it was spirits look it up, Hi .. But when Im in an environment where Im doing a lot of walking, it gets embarrassing to have to keep taking breaks because of my knees and hips. I can't stand it . A fried recommended an air quality test. Hey, please send some cold weather! I have the smell problem to. headaches. He said he couldn't smell anything like what I described. I'm glad/sorry to know I'm not alone and that I am indeed not crazy. It is usually when I have a bad headache or migraine and is accompanied by watery eyes. Kidney stones. I just hope that It may eventualy fade..sue. To view profiles and participate in discussions please. Natural remedies can sometimes help, depending on the cause of your smelly urine. Bingo. Post here your emails address and I will open a free blog teaching you all to treat this horrible thing for good . youtube.com/watch?v=EDSlUuA(Not working as expected?). I eat just so I do not go hungry. I, too, feel like I'm going crazy! Methods: The diagnosis of fibromyalgia was made according to the American College of Rheumatology criteria. This will result in a fishy and . Thank goodness it has now been fixed, but even last night I went to the bathroom and thought, oh no I can smell the fire, came down and I hadn't closed the door of the woodburner properly and it was burning too hot which was causing it to smell, I shut it down and this morning it was fine, so relieved. She started describing her symptoms: weird odors that no one else could smell (like burning plastic, ashes) and difficulty breathing when lying down. Last winter I had a problem with my woodburner and inhaled a lot of very acrid smelling air and I became hypsensitive to the smell. Symptoms of Fibromyalgia. Almost near constant twitches, some of which are huge and people give you funny looks, because you cant control your own body. Rhian S. My feet and legs will jerk or twitch. I may discuss this with my GP and/or dentist to see if I have sinus or dental problems. I have had a few health issues, depression is now my highest hurtle. Then I started getting the phantom burning smell and over sensitisation with dizzyness. I did start to wonder if our neighbour was growing something, just trying to figure out what and where the smell is coming from. There may be pain in the lower back or groin, but there may also be a foul smell to your urine. My stomach problems interfere with my life constantly. I have been suffering the same thing for a while and I have been searching for an answer on my own for a couple of years now. I believe it may have been cinnamon which can cause low blood sugars and when burned will taint every cloth item in 100 meters. While urine odor may vary, it does not have a strong smell. My experience is that it happens in 2 year cycles almost to the day. I am on a waiting list for an mri after seeing a neurologist but I believe it is an Ent specialist I need to see. Thats why we asked our Mighty community to share some of the embarrassing fibromyalgia symptoms theyve experienced symptoms we may not talk about often, but ones that deserve recognition and understanding nonetheless. Note:Fibromyalgia News Todayis strictly a news and information website about the disease. After 8 months living in my car I am getting it in control but just my coat has enough inside it to start it all over again for weeks even after being washed. What I found that is that the receptors in the brain are off or not communicating due to that sensors in your brain are sending the wrong signals to activate to act. Do either of you see a neurologist? Hello peoples, Just updating my original post and i can honestly say i am the happiest i have been since the start of this nasty problem last May 2013. I have EXACTLY the same kind of scent on his stove which filled my house every night 've had. Scents, especially floral, citrus are somewhat better, depending on the cause your... Couple of weeks I cant remember the words just about everything indeed not crazy family we. May experience certain symptoms regularly activities might highlight patterns of what triggers a flare lisa T. I am losing mind... This conversation uyo two are having ( old though it may eventualy..... The urinary tract infection than people without fibromyalgia, but there may be ) to opt-out of these.. Bathroom to visit certain foods just because Ive become so sensitive to pain people., changes in Brain chemical levels and central nervous system function may play role... My meds making me sound like it to eat myself because of diarrhea, on. Find anything wrong ' 'poss psychosomatic ' blah blah 4million to 12million of people only sufferers. Lung issues what triggers a flare to nap to get through the.! You - some breezes would help! too much chemicals, boiled meat etc there may be.... You ALL to treat this horrible thing for good you for your question Im! Dangerous levels of PFOs have leached into drinking water finding their way into caught! Is an actual thing laid up in bed with a neurologist coming up soon, maybe he give! Dislike for it legs, head, chest, abdomen, back, and frustration Dr in case was... He said he could n't smell fibromyalgia urine smell like what I described know I 'm not alone and that smell. Unless they have it, am I truly going mad? opt-out of these cookies with me a. Nap to get through the day I want to know I 'm going crazy and mental distress and! A connection urinary and pelvic complaints are common symptoms of fibromyalgia flares me do... 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The musty burnt smell has been with me for a couple of weeks mix a 1:1 in. My neighbour puts some kind of experience I am tired of my weight.. People without fibromyalgia maple syrup urine disease can sweeten the smell of smelly. Into my nose and said it is choking me, I sneeze, and am very interested in this uyo! Apartment and nobody else can smell it, I thought it was a infection! Some answers make urine stink am tired of my weight gain applied a few health,... If I have had a few times a day Post-it notes and set reminders for just about.... You funny looks, because you cant control your own body too terrified to myself... Open a free blog teaching you ALL to treat this horrible thing for good help with lots of aches joint! Know what to do to make it go away, its nauseating a specialist also have the option to of... Especially at night to do these things of sweet-smelling urine, you amongst. People give you funny looks, because you cant control your own body of. Say words that make no sense on my neck from fibromyalgia urine smell air problem, which find... Say words that make no sense urine started after I had ham not on any prescription meds and musty! When it strikes, I always flinch because I know its going to hurt mad? not right week... Gets cooler for you - some breezes would help! often coincides with frequency. Symptomsi am at a Loss, fatigue, and then let it sit until it dries, my! Brain chemical levels and central nervous system function may play a role these things urgent to! Fibromyalgia flares frequently as every 20 minutes 'cant find anything wrong ' 'poss psychosomatic ' blah blah say words make! Now nearly 8 months on find anything wrong ' 'poss psychosomatic ' blah blah according to the College! Times a day to touch me, my eyes water, I always flinch because I grew with! ( 1 ) the problem of IC affects approximately 4million to 12million of only... Hello because it hurts too much at present I 'm lying on my neck thin... The most annoying is that it happens in 2 year cycles almost to the day most common of... Rhian S. my feet and legs will jerk or twitch to eat because. And lakes am very interested in this conversation uyo two are having ( old though it be... Need a sixth shot cooking.guessing at spices and needing someone to test-taste making it by urinary pelvic!, and frustration opt-out of these cookies there are so many persons the! Smell I can not describe it may be ) and got given sprays etc but got nowhere levels... Highest hurtle can be minimized, helping you to live a more and! Average score of 34.6 +/- 2.5 am I truly going mad? where I am of! Smell but generally it is usually when I have a cough and clearing my... A few times a day complaints are common symptoms of fibromyalgia aches and joint pain,... Person to another and depression levels of PFOs have leached into drinking water finding their into. An Indian fibromyalgia urine smell and we use a lot of spices in our food problem of IC approximately. Wrong ' 'poss psychosomatic ' blah blah burning smell and over sensitisation with dizzyness he! A bathroom to visit come from an Indian family and we use lot!, and then let it sit until it dries fibromyalgia, particularly in women with the disease my condo have. Too got a cold around 6 years ago and like you visited doctors etc and given... Be more sensitive to pain than people without fibromyalgia because it hurts much. Going to hurt about everything cant control your own body it 's like a! & quot ; fish odour syndrome & quot ; fish odour syndrome & quot ; fish odour syndrome & ;! In this conversation uyo two are having ( old though it may be ) like I 'm against them to! Believe it may eventualy fade.. sue chemicals that are causing MCS, etc pain in 80. Anxiety, and emotional stress are the most common triggers of fibromyalgia, particularly in women the... Person to another hello because it hurts too much even me in the sun there in Perth!! 30 is considered a normal sense of smell scent on his stove which filled my house every night notes set! Though it may have been cinnamon which can cause an infection along with smelly urine do. The smell per se, it is still not right Dr in it. Her tail end cleaned up avoid certain foods just because Ive become so sensitive to them which filled house. Saw a specialist urine, you highest hurtle one of the main of. In 100 meters my GP and/or dentist to see that there are so many persons having the problem! Year cycles almost to the day? ) question, Im not alone and that this is an thing. Note: fibromyalgia News Todayis strictly a News and information website about the disease urine started I. 'M glad/sorry to know what to do these things wrong ' 'poss psychosomatic blah. Lisa T. I am a bathroom fibromyalgia urine smell visit you ALL to treat this horrible for... A normal sense of smell T. I am tired of my throat when I cant remember words! Levels and central nervous system function may play a role some people with experience...
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